Exploring Experiences of Pain Management among Family Caregivers of Community-Dwelling Older Adults with Dementia: A Qualitative Study 312 views

Background: Pain is a significant concern in older adults with dementia. Family caregivers play a crucial role in pain management for their care recipients. However, to date, few studies have examined family caregiver’s (FCGs) experiences of pain management for community-dwelling older adults with dementia. Purpose: To provide a deep understanding of experiences of pain management among FCGs for community-dwelling older adults with dementia. Methods: This study used a qualitative descriptive design and constant comparison analytic methods. Family caregivers were recruited and participated in semi-structured face-to-face interviews or phone interviews. Inclusion criterion included being an adult providing care to community-dwelling older adults. Recruitment stopped upon reaching thematic saturation. A demographic questionnaire was used to collect additional relevant information. Results: The study included 25 family caregivers in central Virginia who ranged in age from 29 to 95. Participants were predominantly white, female, married, and had a minimum high school education. Most of them were adult children (52%) or the spouses (28%) of the care recipients. Three themes were identified: 1) Values, 2) Barriers, and 3) Support. Conclusion: Family caregivers follow their values to make decisions in pain management. Barriers existed for effective pain management. Support is needed for family caregivers in pain management.  

PHD (Doctor of Philosophy)

English

All rights reserved (no additional license for public reuse)

2021-04-29